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Journey Forward and C/NET Solutions Leverage Electronic Health Data to Create Survivorship Care Plans for Cancer Patients

December 12, 2013

First-of-its-kind integration overcomes vexing challenge oncology professionals and cancer survivors faced in developing survivorship care plans

LOS ANGELES and  OAKLAND, Dec. 12, 2013 — Journey Forward, a leader in electronic survivorship care plans, and the Public Health Institute's C/NET Solutions, a leading provider of cancer registry software, today confirmed the successful export of patient data from C/NExT CNExT Registry software into the Journey Forward Survivorship Care Plan Builder software. This milestone gives oncology professionals the ability to efficiently and accurately import most of the diagnosis and treatment summary information into survivorship care plans. These plans aim to improve coordination of care for cancer survivors throughout their lives while helping survivors and their care teams understand their cancer treatments and follow-up needs. 

“Until now, survivorship care planning has not been an integral part of electronic medical records. Oncology teams had to input all data by hand, a time-consuming process rife with the potential for inaccuracies,” said Dr. Patricia Ganz, Director, Cancer Prevention and Control, Jonsson Comprehensive Cancer Center at UCLA. “Journey Forward and C/NET Solutions have overcome this barrier by exporting information from C/NET Solutions’ s registry product--including staging and treatment regimen-—into Journey Forward’s Survivorship Care Plan Builder where a full and individual Care Plan can then be completed. Journey Forward is aiding cancer survivors and their healthcare teams to leverage existing data into electronic Survivorship Care Plans.”

The Survivorship Care Plan Builder is a free software solution from Journey Forward that lets oncology professionals quickly and easily create Care Plans that meet the Institute of Medicine (IOM) 2005 recommendations.

Patient Privacy Is Ensured

Journey Forward is a Windows-based software program. Because Journey Forward does not store any data, the patient’s information is private and the integrity of their medical records is protected.

“We initiated the pilot project with Journey Forward last year because we saw the value it would add to cancer patient care and follow-up,” said Alan Houser, MS, MPH, Director, C/NET Solutions. “Together, we developed a working export and field-tested this solution with an enthusiastic group of healthcare professionals. They unanimously embraced its ease of use and our commitment to making cancer registry software and survivorship care planning software more accurate, powerful and useful.”

Cancer survivors and health care professionals can download the free Survivorship Care Plan Builder from the Journey Forward website at journeyforward.org. Information about C/NET Solutions’ proprietary registry software, CNExT Registry, CNExT Enterprise and CNExT Multi-Hospital is available on askcnet.org.

About Journey Forward

Journey Forward is a unique collaboration of organizations including UCLA’s Cancer Survivorship Center, the National Coalition for Cancer Survivorship, the Oncology Nursing Society, WellPoint and Genentech. Journey Forward has promoted Survivorship Care Planning since it was identified as a significant gap in care by the 2005 Institute of Medicine (IOM) “Lost in Transition” report. The report found survivors are ‘lost in transition’ as they move from active treatment to survivorship. With no current system of coordinated follow-up care, Journey Forward was developed to help bridge the gap. Journey Forward continues to lead and innovate in survivorship care planning to ensure that the nation’s 14 million cancer survivors are no longer lost in transition. Please visit journeyforward.org for more information.

About C/NET Solutions

C/NET Solutions, the maker of CNExT software, has been a leader and innovator in the cancer registry software field for 30 years. As a nonprofit organization, its commitment is to cancer registrars and quality data collection. C/NET is a part of the Public Health Institute. Please visit askcnet.org and phi.org for more information. 


For more information:


Journey Forward:
Cara Stewart, 949-290-5563
C/NET Solutions (a program of the Public Health Institute):
Ann Whidden, MPH, 510-285-5631