National Survey Seeking Respondents on Disability-Inclusive Breast Health Care

A new survey conducted by CAMI Health and the Center on Disability—both programs of the Public Health Institute—is exploring how breast health care is experienced and delivered for women with disabilities as part of a national research study.

The study focuses on:

• Breast cancer risk assessment
• Screening conversations
• Access to care
• Shared decision-making

The study is seeking perspectives from both healthcare teams and women with disabilities, and the results will be used to create provider education and training resources for more inclusive breast health care.

Participant Survey: Breast Health and Disability-Inclusive Care

The brief survey (10-20 minutes) will ask about demographics, provider attitude and overall experience talking about breast cancer screening. This survey is for women with disabilities and health conditions ages 18-74.

Definition of Disability: Any physical, sensory, cognitive or mental health condition that substantially limits one or more major life activities (consistent with the ADA). This includes but is not limited to mobility impairments, visual or hearing impairments, intellectual disabilities, autism and mental health conditions.

Provider Survey: Breast Health Risk Assessment and Disability-Inclusive Care

The survey aims to assess professional perspectives and inform the development of training resources and quality improvement tools. Survey data will be collected and stored on a secure, password-protected platform. The time commitment is approximately 10 minutes to complete the survey and no personal identifiers will be collected.

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CAMI Health is dedicated to improving the health of women worldwide through collective global action. They address complex public health problems impacting women and their families by building and leading learning networks. They foster collaborations, manage knowledge and set priorities for action.

The Center on Disability is dedicated to improving the lives of people with disabilities through disability policy, civil rights, disability law, employment, health issues, independent living and emergency preparedness. The Center’s disability-related projects use expertise in research, technical assistance, training and information dissemination.